Tony and Sue

Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for a transplant. Tony reflects on his experiences.

Sue became ill in her early fifties with pulmonary fibrosis. Very quickly life changed for us. We’ve been together since we were teenagers. We were devastated when we received the diagnosis of IPF.

I’m always reminding myself that Sue used to be able to do everything and now she can’t I have to be an extension of her. She still has the same strong opinions, emotions and aspirations. I’ve learnt to be more patient, tolerant and understanding.

Click here to read the full story on the Action for Pulmonary Fibrosis website.