Personal Stories


Wendy Dickinson Wendy Dickinson

Travelling with Pulmonary Fibrosis - Resources, Advice & Experiences.

Everyone loves a holiday or to visit family and friends abroad. But when you have pulmonary fibrosis, you have more challenges than most. This short guide is designed to help you navigate those challenges and includes advice from fellow patients and links to helpful resources.

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Wendy Dickinson Wendy Dickinson

Ruby and Subita

Remembering my mother by Ruby Rai. My Mum, Subita Rai, was diagnosed with PF in 2000, aged 52. This was after around about a year to 18 months of repeated bouts of what her GP had said were chest infections.

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Wendy Dickinson Wendy Dickinson

Susan | Frontline nursing to homeworking

Susan talks about her experience of volunteering as a Patient Ambassador with Action for Pulmonary Fibrosis during the last 10 months of Lockdown. Susan has pulmonary fibrosis. Overnight she switched from frontline nursing to front room home working.

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Wendy Dickinson Wendy Dickinson

Tony and Sue

Many people care for loved ones with pulmonary fibrosis. Tony, in his fifties, gave up work and now cares for his wife Sue who has IPF. Sue is on anti-fibrotic drugs and currently being assessed for a transplant. Tony reflects on his experiences.

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